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Consent and capacity are fundamental legal and ethical concepts that appear repeatedly in SJT scenarios. This lesson provides a thorough examination of informed consent, the legal framework for assessing capacity, Gillick competence for patients under 16, the Mental Capacity Act 2005, and best interest decision-making.
Valid informed consent requires three elements, all of which must be present simultaneously:
| Requirement | Detail |
|---|---|
| 1. Information | The patient must be given sufficient information about the proposed treatment, including risks, benefits, alternatives, and the consequences of doing nothing |
| 2. Capacity | The patient must be able to understand, retain, and weigh the information, and communicate a decision |
| 3. Voluntariness | The decision must be made freely, without coercion, undue influence, or pressure from healthcare professionals, family, or others |
If any one of these three elements is absent, consent is not valid.
The landmark case of Montgomery v Lanarkshire Health Board (2015) established the modern legal standard for informed consent in the UK:
A doctor must disclose any material risk — a risk that a reasonable person in the patient's position would consider significant, or one that the doctor knows or should know this particular patient would consider significant.
| What to disclose | Example |
|---|---|
| Common risks | Side effects that occur frequently |
| Serious risks | Rare but severe complications (e.g., death, permanent disability) |
| Alternatives | Other treatment options, including doing nothing |
| Individual risks | Risks that are particularly relevant to this patient (e.g., a professional musician being told about a risk of hand numbness) |
| Expected outcomes | What the patient can realistically expect from the treatment |
Scenario: A patient is about to undergo a minor procedure. The registrar asks you (a medical student) to "get the consent form signed."
| Action | Rating | Why |
|---|---|---|
| Explain that as a medical student you are not qualified to take consent for a procedure you cannot perform, and ask the registrar to do it | Very appropriate | Consent should be taken by someone qualified to perform the procedure and answer questions about it |
| Take the form to the patient and ask them to sign it | Very inappropriate | You cannot take meaningful consent for a procedure you do not perform |
| Explain the procedure to the patient based on what you know and get them to sign | Inappropriate, but not awful | Well-intentioned but you are not qualified to take this consent |
The Mental Capacity Act (MCA) provides the legal framework for assessing capacity and making decisions for people who lack it.
| Principle | Explanation | SJT implication |
|---|---|---|
| 1. Presumption of capacity | Every adult is presumed to have capacity unless proven otherwise | Never assume someone lacks capacity without assessment |
| 2. Right to support | All practicable steps must be taken to help the person make their own decision | Use interpreters, visual aids, simple language, choose the best time of day |
| 3. Right to make unwise decisions | A person is not to be treated as lacking capacity merely because they make a decision that others consider unwise | Do not equate disagreement with incapacity |
| 4. Best interest | Decisions made on behalf of a person who lacks capacity must be in their best interest | Follow the best interest checklist (see below) |
| 5. Least restrictive option | Any action taken must be the least restrictive of the person's rights and freedoms | Choose interventions that preserve as much autonomy as possible |
A person has capacity for a specific decision if they can:
| Step | Test | Example |
|---|---|---|
| 1 | Understand the relevant information | Can they understand what the treatment involves, its risks, and its benefits? |
| 2 | Retain the information long enough to make the decision | Can they hold the information in mind for the duration of the decision-making process? (Even brief retention counts) |
| 3 | Weigh the information | Can they consider the pros and cons, balancing different factors? |
| 4 | Communicate the decision | Can they express their decision by any means (speech, writing, gestures, eye movements)? |
| Point | Detail |
|---|---|
| Capacity is decision-specific | A patient may have capacity for simple decisions (what to eat) but not complex ones (whether to have surgery) |
| Capacity is time-specific | A patient may lack capacity at one point (when sedated) but regain it later |
| Capacity is presumed | The burden of proof is on those who claim the patient lacks capacity |
| Unwise ≠ incapable | A patient who makes a decision you consider foolish is not necessarily lacking capacity |
| Fluctuating capacity | If capacity fluctuates, try to time important decisions for periods of capacity |
In Gillick v West Norfolk (1986), the House of Lords established that children under 16 can consent to treatment if they have sufficient understanding and intelligence to fully understand what is proposed.
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